Completely new to any kind of forum. Not an online person at all. Find communication draining. Feeling very alone and lost in life in general. Hard to get going and make any progress when everything I do has a cost attached. I can pretend to function in world for one day but will pay price following few days, and is horrible cycle. Don't have energy to find help and was recently getting help from a "mentor" who I trusted and relied upon but they let me go so suddenly I feel hopeless again and don't see much point in trying because it is so hard for me and don't even know where to turn. Stuck in life and feel forgotten about in general. I was diagnosed probably three years ago and the whole experience has been completely crap from pre and post diagnosis support lacking in any meaningful way. If the whole of life is just a tick box for everyone what's the point. I am a highly educated late diagnosed women who somehow is now forty..... If that helps set context of my struggles. Not sure how I found this website but I will give it a try.
Hello
- Thread starter AH13
- Start date
Hi there — I’m really glad you posted, especially if forums and online spaces aren’t usually your thing. Reaching out when you’re feeling this drained and alone takes a lot of effort, and it makes sense that it would feel hard.
What you describe about being able to function for a day and then paying for it for several days afterwards is something many neurodivergent people experience. That cycle of pushing yourself to cope and then crashing can be incredibly exhausting and discouraging. It’s understandable that it would make everything feel a bit hopeless.
Losing support from someone you trusted — especially suddenly — can be really painful too. When you’ve finally found someone who seems to understand, having that taken away can make the world feel even lonelier.
You’re definitely not the only late-diagnosed woman who has felt let down by the lack of support after diagnosis. A lot of people find that the diagnosis answers some questions, but the practical help afterwards is often missing.
For what it’s worth, you don’t have to write long posts or engage all the time here. Even just reading, or posting occasionally when you have the energy, is completely okay. You’re not forgotten here, and there are people who understand the kind of struggles you’re describing.
What you describe about being able to function for a day and then paying for it for several days afterwards is something many neurodivergent people experience. That cycle of pushing yourself to cope and then crashing can be incredibly exhausting and discouraging. It’s understandable that it would make everything feel a bit hopeless.
Losing support from someone you trusted — especially suddenly — can be really painful too. When you’ve finally found someone who seems to understand, having that taken away can make the world feel even lonelier.
You’re definitely not the only late-diagnosed woman who has felt let down by the lack of support after diagnosis. A lot of people find that the diagnosis answers some questions, but the practical help afterwards is often missing.
For what it’s worth, you don’t have to write long posts or engage all the time here. Even just reading, or posting occasionally when you have the energy, is completely okay. You’re not forgotten here, and there are people who understand the kind of struggles you’re describing.
Joeys
Member
Hi AH13. I'm late diagnosed too. I can't remember how I found this either and it was only a few weeks ago. I agree with the tick box analogy it really resonates with me. The only difference is now I have the correct boxes I tick opposed to guess work. I'm sorry you lost trust in someone. I cant understand but can appreciate how hard it is to trust initially etc. Hope you find this place useful. People are decent on here. I'm glad you gave it a try. Joey.
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