Guest blog

Why Autism eugenics is everybody’s business

“Spectrum 10K”, an autism study billed as the largest of its kind in the UK, has been launched. The very community at the heart of it are petitioning for it to be halted, but the wider implications should be a concern to society as a whole.
Under the new study gene samples from 10,000 autistic people are being collected, and combined with samples already gathered from 90,000 autistics around the world, including questionnaires, medical and educational records. The autistic community fears that the study opens the door to “eugenics” without proper accountability and safeguards …

Treasurer – Director

The Treasurer is a director of NeuroDiverse Self Advocacy Partnership CIC (NDSA) and shares responsibility with the rest of the board for the governance of the organisation. …

IT Director and digital leader

Voluntary role If building a secure digital infrastructure for an exciting peer to peer support project which could make a huge difference to thousands of people excites you, talk to us. You could be located anywhere in UK as this is a remote opportunity. What will you be doing? You would need to be able … Read more

Elastigirl: The Autistic Zebra

I have lived with the symptoms of EDS my entire life, with joint pain and symptoms of POTS appearing when I was a toddler, although being so small I was unable to adequately express what I was experiencing. Having lived with a certain degree of chronic pain and fatigue my entire life, and being unable to remember a time when I did not live in agony, I assumed it was a completely normal part of the human experience and I was simply lazy and weak for being unable to push through like everyone else did. …

Flow Unlocked: an interim reflection

Dr Georgia Pavloopoulou is an autism researcher specialising in family research and autistic mental health. She uses community based participatory methodologies guided by the lifeworld of the participant . Her recent study on the impact of COVID19 on family members of autistic people, showed how lacking society’s understanding is of #autistic lives and the wider autistic community. We have co-established FlowUnlocked to address this urgent issue. …

Living for the HEATWAVE!

I went round to give my boyfriend a hand with some DIY this morning and he invited me in for a natter, as he wasn’t ready to start yet. So 10 minutes in, I begin getting twitchy. Why? I’m looking out of the window at a gorgeous blue sky. I can feel the heat through … Read more