ProfessorWorm
Active member
I’m prepping for an EDS diagnostic appointment next month, it’s partly why I haven’t been as active as I would like (the other part is severe chronic pain and fatigue). I’ve heard all sorts of horror stories, and I’m absolutely terrified they won’t believe me. I’ve lived with these symptoms all my life, and constantly been told I was being dramatic or making things up for attention so I have lots of trauma already around this. If anyone could give me a rough idea of what to expect that would be great.
On a related note, if anyone has any suggestions for ways to manage in the mean time that would be great. I’m in agony all the time, but I can’t bear to bear weight on my legs let alone walk. I’ve experimented with kinesiology tape but couldn’t get it to provide enough support and upon removal, even saturated in water and eventually oil, it tore off the first few layers of skin.
On a related note, if anyone has any suggestions for ways to manage in the mean time that would be great. I’m in agony all the time, but I can’t bear to bear weight on my legs let alone walk. I’ve experimented with kinesiology tape but couldn’t get it to provide enough support and upon removal, even saturated in water and eventually oil, it tore off the first few layers of skin.
