Misconceptions myths and stereotypes about autism

Since my later in life diagnosis in 2021, aside from the prejudice and discrimination attitudes there still remains out there and the “refusal to understand” towards mental health issues, disabilities and hidden disabilities like autism, I’ve really been shocked in this day and age to discover how bad it still is, with comments along the lines that people don’t have time for handholding, that mental health issues are not real issues, that people are “making trouble” - and that people with autism should not be allowed to live alone, that the only way to manage autism is by ultra strict discipline - what have people’s experiences been like? Do the public need to be educated better about autism?
 
100% need better education for the public.

I'd say start with the workplace - it's astounding how many people out there genuinely claim they are creating an 'accepting' workplace and then tell you to not express yourself in the only way you can, or not to overthink, etc.

If businesses were encouraged (esp by law) to actually support people on the spectrum properly rather than asking us to change in differnet words, that would have a ripple effect.
 
100% need better education for the public.

I'd say start with the workplace - it's astounding how many people out there genuinely claim they are creating an 'accepting' workplace and then tell you to not express yourself in the only way you can, or not to overthink, etc.

If businesses were encouraged (esp by law) to actually support people on the spectrum properly rather than asking us to change in differnet words, that would have a ripple effect.
All businesses must be required by law to radically change their policies and the only way to do that is by strong legislation that forces them to change their attitudes, but it would have to be drafted in such a way that there would be no way for them to get around it or create false impressions that they were complying with law - part of this would have to become part of the criminal law, where managers would be arrested and jailed - the supermarkets are the worst offenders in this regard
 
Definitely a big need for change. When I asked for a referral my GP tried to put me off, saying that neurodivergence was a "popular thing" at the moment. Then the local CASS service has regularly sent me emails as if I was a parent with am autistic child, rather than an autistic adult. They also don't run any services where you can bring along a baby - so a stereotype that autistic people can't be parents. I've tried to educate in each of these instances but as with all discrimination it's a big burden on the individual. More education needed.
 
First, learn what gives. I've huge doubts about the objectivity of the entire diagnostic foundation here, as the original research was trying to discover why some Polish kids didn't make good Stormtroopers Communists. I finally realised specialists in my subjects had no difficulties with my theses, ie it's not my end, but the shrinks', of the communications which are at odds. Further, they've only ever talked extensively to one person, Temple Gradin. At that point I tore up the diagnosis and looked more widely. Now, this is me being subjective, not anyone else, and your diagnosis may be fine, but where they started from also influenced ADHD, so it's a far wider issue. Simply saying "I'm the expert, you know nowt" isn't enough, they don't live inside of "me" and unless it's a good fit...you get my drift. Even the High Court had enough of that line recently, when they took the diagnostic authority of The Tavistock Clinic, Freud's last base, away: I was cheering because they caused most of my issues!
So, where do we start? I think we need some kind of poll, as to how comfortable we are, self-critically, with our specific diagnoses, as the fact we're self-advocates implies we're not entirely at home with the standard models, if they even exist. It's in the details it all falls apart. We think differently: if so, how? I think more, and I don't think linearly, necessarily, because one thought may have a number of implications. This is probably a male thing, ladies tell me this is their normal, but one factor in choosing Kinetic Shift trauma therapy, as it only uses light hypnosis, so I could run the meditation on one channel, monitor the drain on a second, communicate with the therapist on another, as long as none became cognitively active.
 
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First, learn what gives. I've huge doubts about the objectivity of the entire diagnostic foundation here, as the original research was trying to discover why some Polish kids didn't make good Stormtroopers Communists. I finally realised specialists in my subjects had no difficulties with my theses, ie it's not my end, but the shrinks', of the communications which are at odds. Further, they've only ever talked extensively to one person, Temple Gradin. At that point I tore up the diagnosis and looked more widely. Now, this is me being subjective, not anyone else, and your diagnosis may be fine, but where they started from also influenced ADHD, so it's a far wider issue. Simply saying "I'm the expert, you know nowt" isn't enough, they don't live inside of "me" and unless it's a good fit...you get my drift. Even the High Court had enough of that line recently, when they took the diagnostic authority of The Tavistock Clinic, Freud's last base, away: I was cheering because they caused most of my issues!
So, where do we start? I think we need some kind of poll, as to how comfortable we are, self-critically, with our specific diagnoses, as the fact we're self-advocates implies we're not entirely at home with the standard models, if they even exist. It's in the details it all falls apart. We think differently: if so, how? I think more, and I don't think linearly, necessarily, because one thought may have a number of implications. This is probably a male thing, ladies tell me this is their normal, but one factor in choosing Kinetic Shift trauma therapy, as it only uses light hypnosis, so I could run the meditation on one channel, monitor the drain on a second, communicate with the therapist on another, as long as none became cognitively active.
Rahere, did you extensively edit your post after submitting it? I got an email notification about the thread but your comment there is substantially different and now I'm confused about which to respond to. I think both your comments have a common thread though: we need more research done by autistic researchers about what autism is, asking the research questions of autistic people directly. That should help clear some things up.
 
Rahere, did you extensively edit your post after submitting it? I got an email notification about the thread but your comment there is substantially different and now I'm confused about which to respond to. I think both your comments have a common thread though: we need more research done by autistic researchers about what autism is, asking the research questions of autistic people directly. That should help clear some things up.
I may have extended it, realising there was more which could usefully be said. That's certainly true, but it's wider than that. Neurodiversity is more than two groups, and it's taken me several increasingly large returns to the theme to realise we're being kept in almost total ignorance. One of my study areas involves the development of modern thought in the 15th and 16th centuries, including the end of 4-element Paracelsian philosophy into early chemistry. There's much in common here. When I tore up my diagnosis, it was very much in mind of that, realising I might need to start over, but the Jacobsen text has somewhat revived my faith there is some knowledge out there.

What may be useful is to become more specific about the ways in which we are divergent, moving from the Disorder viewpoint to the Condition, getting away from generalisations like "we think differently" to "I think in complex networks of logic", "my brain was examined and is hyperactive", "I was trained to be able to search huge data fields intuitively". One facet, I think, may be hyper-skills. Hyper-sensitivity, hyper-perception, these relate to genius competences to be on the subject first, but what others are there? What do you do which leaves then disbelieving? The kind of magic Arthur C Clarke described as advanced technology?
 
Sure. I don't actually believe in labels as certainties. I think they're helpful within the context of society for categorising things which may need a generalisation in order to be addressed (e.g. for funding purposes or research as mentioned). So for me "autistic" is a useful label in so far as it might help me access better mental health support, or get reasonable adjustments at work. But it certainly has it's limitations and I wouldn't use it in some contexts for safety/ convenience/ to free myself from prejudice.

To anyone who uses the phrase "disorder" to me I also point to the social model of disability rather than the medical. It is usually society which disables us by not being built for us. As you said, communication is a two way street: Crompton et al 2020 discovered that autistic individuals communicate perfectly fine with other autistic people. It's only once you have a mixture of neurotypes that communication starts to falter. Given how many people with ADHD are also in my close friendship group I would suspect that Autistic to ADHD communication is very similar, and that supports you theory of the diversity of neurodivergence. That said, this isn't a new thought - the term neurodivergence itself covers in addition dyslexia, dyspraxia, dyscalculia. I imagine a hundred years into the future we'll have a much more diverse understanding of neurodiversity as a more infinite spectrum. I like the image of people's brains as a sound board with lots of aux inputs, and everyone is uniquely set up...

Anyway. Waffling.
 
Did you know I was a sound engineer for a while? My brother was a pro, Noel Edmonds SE of choice. I turned more towards stage management, actually promoted to mentor at Southbank before HMG bankrupted them.

I don't think you are waffling, just none too certain about what gives. You'd own the condition if you were. I'm now clear of the very unusual balance of my own psyche,

At the same time, I do know someone low-functioning, and they do need ongoing life-long help. It's not my intent to disrupt that. And yet, we're so seriously discriminated against, essentially because nobody knows because nobody's asked, they've just supposed, so something must be done to firstly define in our own terms what we are, and then to get it out there so folk move past the Rainman, weirdo, misfit, geek axiom.
 
I started in voice at Alleyn's, for others the birthplace of the National Youth Theatre. We might had had the National Youth Choir as well, it was one of Brittain's, until a safeguarding scandal broke the relationship. A decade later, I joined and discovered anarchy, but my household chore, the weekly wash, put me in the local laundrette as Brenda. As my voice broke, she gave me pointers on managing it, so I came out of it experimenting with another couple of teenagers exactly what was possible. A couple of years later, I was dossing in Admin until it was safe to head, when a caterwauling came from the Hall, the pupils stage company attacking the Mikado, and he was winning. So I started teaching the basics, warm-ups, then the dots, and it worked. That spread to the NYT, and Michael Crawford, who Britten had turned to after the schism. Thus, ALW had a corps of singers at his disposal, while I was off on the Uni circuit. Brenda? Lady Brenda Evans, Sir Geraint's wife. One of the three was David Roblou, Guildhall's Baroque coach, best in the world.
How do you work projection?
 
How interesting!! I did NYT in 2010. It was the year they were practicing for large scale events at the Olympics and I'll be honest I found it rather traumatising. A lot of standing around in the rain outside being shouted at. Not a lot of acting.

I'm into Shakespeare, have done a lot of Theatre in Education projects around it touring schools across England. Although my job itself is the planning side of that now, rather than delivering or teaching.
 
I don't expect others to understand, even when I try to explain.
I'm still realising and learning. My diagnosis gave me the ability to spot when an issue occurred and to then align that in my mental framework of why that happened. I can explain that bit; nobody else can understand (or remember) that sequence to avoid it in the future except me.

If you say "that's a problem", they won't understand why/how. They will also fail to see an identical situation in the future.

I figure: If I'm struggling with my personal traits/issues then I can't expect others to also be aware; I'm only aware after something's happened. It just means that next time I might spot when it happens again and have a quick word/intervention, else to be able to know where that sits in my framework to explain it away.

I am finding that I need to identify the issue, put it into my framework of autism/me, then find the relevant language to coherently pin that onto the autism problem list when trying to communicate with others.

If you don't know where the problem fits in your list of issues, you can't have confidence to speak out using consistent language that aligns with autism traits.

Many situations are complex as it's when several issues are overlapping; a meltdown is when too many of those coincide at the same time... but being able to identify and name each component part of the problem helps me to rationalise my thinking, to just get me through to the end, when I can analyse what happened, give it a language and thereby avoid it in the future if possible.

A lot of the time I can just identify it, know I'm having an issue and be able to continue to mask until such time as I can remove myself from the building... back home... to sleep for hours. But if I live to fight another day, sometimes that's needed (e.g. in temporary jobs where you just have to keep going to a fixed ate and it'll be over forever).

Example: The other day I had it planned in my head, I was going into a shop, to buy an item, pay at the till, leave. Simple.
I knew what I was looking for, I could see the till. Simple.
I was paying by contactless card, I know how to do that. Simple.
Then it fell apart.... the till operator asked me a question that was clearly a simple question/instruction and I wasn't expecting it....
Something like "there's a voluntary charity donation; if you are happy with that press green on the keypad, else press red ..."
I can't process unexpected verbal instructions.... I had to repeat that 3-4x in my head to get the words/sentences to land in my brain so I understood what I was being asked to do and that I was doing the right thing.
I was then "hyper" for about 30 minutes, so walked into the Job Centre babbling and incoherent, excitable and probably 'weird'... because I was asked a simple unexpected question in a shop.
But: Because I realised this, I told the JC staff member what'd happened the minute I sat down so they knew I was having an issue and was calming down.
 
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You're not the only one to suffer from automated chugging. I counted four unnecessary button pushes yesterday to escape from Morrisons - there's been times when I just left the goods, told the girl I can't cope with this. You're entitled to complain. Perhaps get it added to the Sensitive Customer profile, or whatever they call it. In fact, why not egg it up a bit, let it out on the spot so they get to see what they've done. This is my old GAD provocative stance coming out, on of he stroppy squad fighting for disability rights in the 80s. Legally, go read up on The Equality Act 2010, on legislation gov uk. You don't need a prescription, just a year's being off, and we've been as we are since birth, so that's covered.

I don't know if I have a list of issues, but mentioning it on here's a start. What you're talking about is stress avoidance, duplicating the IAS trauma response. You know it's going to trigger the trauma, and so you've got a habit to avoid it. Then you overload, so that's the two types of meltdown I recognise, but there may be others.
Again, I'm questioning "aligning with autism traits" as if it doesn't. You don't have to corset your mind into their prescription.
I don't expect others to understand, even when I try to explain.
I'm still realising and learning. My diagnosis gave me the ability to spot when an issue occurred and to then align that in my mental framework of why that happened. I can explain that bit; nobody else can understand (or remember) that sequence to avoid it in the future except me.

If you say "that's a problem", they won't understand why/how. They will also fail to see an identical situation in the future.

I figure: If I'm struggling with my personal traits/issues then I can't expect others to also be aware; I'm only aware after something's happened. It just means that next time I might spot when it happens again and have a quick word/intervention, else to be able to know where that sits in my framework to explain it away.

I am finding that I need to identify the issue, put it into my framework of autism/me, then find the relevant language to coherently pin that onto the autism problem list when trying to communicate with others.

If you don't know where the problem fits in your list of issues, you can't have confidence to speak out using consistent language that aligns with autism traits.

Many situations are complex as it's when several issues are overlapping; a meltdown is when too many of those coincide at the same time... but being able to identify and name each component part of the problem helps me to rationalise my thinking, to just get me through to the end, when I can analyse what happened, give it a language and thereby avoid it in the future if possible.

A lot of the time I can just identify it, know I'm having an issue and be able to continue to mask until such time as I can remove myself from the building... back home... to sleep for hours. But if I live to fight another day, sometimes that's needed (e.g. in temporary jobs where you just have to keep going to a fixed ate and it'll be over forever).

Example: The other day I had it planned in my head, I was going into a shop, to buy an item, pay at the till, leave. Simple.
I knew what I was looking for, I could see the till. Simple.
I was paying by contactless card, I know how to do that. Simple.
Then it fell apart.... the till operator asked me a question that was clearly a simple question/instruction and I wasn't expecting it....
Something like "there's a voluntary charity donation; if you are happy with that press green on the keypad, else press red ..."
I can't process unexpected verbal instructions.... I had to repeat that 3-4x in my head to get the words/sentences to land in my brain so I understood what I was being asked to do and that I was doing the right thing.
I was then "hyper" for about 30 minutes, so walked into the Job Centre babbling and incoherent, excitable and probably 'weird'... because I was asked a simple unexpected question in a shop.
But: Because I realised this, I told the JC staff member what'd happened the minute I sat down so they knew I was having an issue and was calming down.
 
Again, I'm questioning "aligning with autism traits" as if it doesn't. You don't have to corset your mind into their prescription.
At the till/press the button, I personally found this ticked these boxes:

1/ Change. I didn't expect this change. It was an unexpected change.
2/ Processing of verbal instructions. This might be me/not everybody has this.

When I encountered change, I had to stop and slowly repeat each word in my head, 2-3x then recall what the correct next action would be.
I go into "slow motion", during which time I can't be hurried.....
I did say to the till lady: "Sorry, just thinking it through, I'm autistic and struggle with processing unexpected questions"... if I can identify something and voice it, even/especially to a stranger, to give them a reason for my freezing/hesitancy/confusion... I find it can help as they become "embarrassed" thus giving me the time to do what I need to do :)
 
How interesting!! I did NYT in 2010. It was the year they were practicing for large scale events at the Olympics and I'll be honest I found it rather traumatising. A lot of standing around in the rain outside being shouted at. Not a lot of acting.

I'm into Shakespeare, have done a lot of Theatre in Education projects around it touring schools across England. Although my job itself is the planning side of that now, rather than delivering or teaching.
Do you remember Shakespeare In Love? Ned Allen crashing the gates open, the touring company returns. Same bloke, married the daughter of the owner of the Southwark Stews, the "entertainment complex" at the south end of London Bridge. He invested in farmland, buying everything from Crystal Palace/Streatham to he river. That would cause gangland war when he died, so the Lord Chancellor sat him down to write a will, setting up a school so the lads playing the womens roles could read their parts. My fav is Robert Armin.

What might be a big plus is to hook into Social Prescribing
 
It's super frustrating to see those attitudes still around. Awareness makes a huge difference. When people learn about autism, they realize it’s not just about strict rules; everyone's experience is unique. More open conversations and education could really help break down those misconceptions.
 
First, learn what gives. I've huge doubts about the objectivity of the entire diagnostic foundation here, as the original research was trying to discover why some Polish kids didn't make good Stormtroopers Communists. I finally realised specialists in my subjects had no difficulties with my theses, ie it's not my end, but the shrinks', of the communications which are at odds. Further, they've only ever talked extensively to one person, Temple Gradin. At that point I tore up the diagnosis and looked more widely. Now, this is me being subjective, not anyone else, and your diagnosis may be fine, but where they started from also influenced ADHD, so it's a far wider issue. Simply saying "I'm the expert, you know nowt" isn't enough, they don't live inside of "me" and unless it's a good fit...you get my drift. Even the High Court had enough of that line recently, when they took the diagnostic authority of The Tavistock Clinic, Freud's last base, away: I was cheering because they caused most of my issues!
So, where do we start? I think we need some kind of poll, as to how comfortable we are, self-critically, with our specific diagnoses, as the fact we're self-advocates implies we're not entirely at home with the standard models, if they even exist. It's in the details it all falls apart. We think differently: if so, how? I think more, and I don't think linearly, necessarily, because one thought may have a number of implications. This is probably a male thing, ladies tell me this is their normal, but one factor in choosing Kinetic Shift trauma therapy, as it only uses light hypnosis, so I could run the meditation on one channel, monitor the drain on a second, communicate with the therapist on another, as long as none became cognitively active.
This is something that is beyond my understanding, however what I will say is that in the modern era, that is so obsessed with science (that in our age is not underpinned by religious based teachings and moral values) and where we have “mental health issues” and similar, historically in the Medieval era, the Church controlled things to do with what we call “mental health issues” today, which also, any mention of religion is considered “the last taboo” in our times - frankly, anyone, even today, who has mental health issues and who has a religious faith or any other connection with a higher power is at a distinct advantage - During Covid, as a traditional Catholic, I taught myself to pray the Rosary in Latin and I found it very helpful and useful, reassuring and comforting and now, it is an important part of my regular spiritual practice
 
This points towards my discussion on transception, which earned the plaudits of a top psychiatrist specialising in trauma, Bruce Duncan Perry. There's four forms of perception of our tangible environment, but none of our intangible, I applied my knowledge of Reiki to connect empathy, 3rd sector medicine, and the numinous, in a way which is slightly larger but very much tips its cap towards Abraham Maslow's seminal thinking at the peak of his Pyramid of Aspiration, which he called the transpersonal. My general term, the perception of the intangible, spreads its net wider, as the literature is riddled with other instances.
What I did find in this general area was Mary-Elaine Jacobsen's The Gifted Adult, which does stray into facets of genius. I'm making a distinction between Genius - that was natal to me - and Giver-Giftedness, which although latent took a check for source from the CofE Church Army Seminary to trigger fully. I'd demonstrated a seer ability, they applied the discernment test, setting me an impossible question, I was secure in knowing the original intervention had checked out on the button, so I cleared my channels and dived for cover, as I was invoking the Almighty. Something indeed spoke through me, which was not me, and answered the question precisely. I was duly grateful, while checking I was physiologically intact - but it wasn't the the change was made, I was no longer a God-botherer, but God-bothered, very happily and trustingly, going on to biblical levels, which are not mine to boast of, but rather bowing deeply before that numinous inspiration.
It went on to truly incredible levels, using prepared situations certainly going back to 1883, and possibly the 13th Century.
 
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