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What is the 1 st most important priority in autism policy?
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<blockquote data-quote="Natashanathan6" data-source="post: 1809" data-attributes="member: 487"><p>I think first my writing the questions mental health and well-being, you are already confusIng lots of us.</p><p>The word well being is not used a lot, so to put it together with mental health, you need to make it clear what you are actually trying to help? It’s common for us to think that all Psychological,pychologists and Psychiatrists are the same, that they are all going to come in white coats and lock us up. When you go for help, so it actually stops some people going for help. </p><p>I am autistic, and have fibromyalgia, hypomobility and have also had operations on my tummy because of of boarding tumour. I am now under Dr Carline Firman, senior clinical psychologist pain team. at the moment and had to ask my autism nurse to attend all the meeting with me. Because I was not only to frightened, but needed some reassurance also the way we/ an autistic person to experience pain is totally different than someone who is not autistic. Even ”worry tummy” is real if you are frightened or anxious about something it can make the pain worse. Learning where the pain comes from, is scary when you are on your own, then figuring out if you should talk to someone about it can be challenging. Making your mental health and well being even worse? Cognitive behavioural therapy is really good to help with mental health and wellbeing and it can be effective once your sessions have finished because you can the how to do some exercises on your own.</p><p>I have seen counsellors, and psychiatrist who at first just Monitor me, because of all my health conditions, I just needed someone to talk to. They said there “ was nothing wrong with my mental health, but my health condition and society “ made it difficult sometimes.</p><p>Covid-19 was emotional, and mental difficulty when all you see and hear is bad news about the effects on autism, volunteer Which works closely with inclusion north and sometimes and LeDeR in action North Yorkshie. So I already knew about those with learning disabilities and autism dying before their time, to young. The no help was given to look after us during covid-19 and we had the highest amount of deaths. Then all the news about DNR, not even properly talked about, was difficult.</p><p>At some time my son, who is 22 became very unwell, with his mental health, we were in lock down at the time, because I am not the patient just the mum, no reasonable adjustment were put in place so I could communication with the team looking after him. There was lack of communication, and I was not heard or they thought I was over exaggerating, misinterpreted, what I was trying to say.</p><p>As an result once my won, went to the hospital I had to seek help myself, the ripple effects, I am still struggling with now. </p><p>it hard, for an autistic mum, who sudd finds there son has severe mental health problems, and help when my my head is tellling me to running away, this is is it physically and mentally to difficult, but your heart still says he is your son, I cannot separate my emotion, when asked what help I need away from what happening with my son. </p><p>I am sorry for a going on.i have lots more to share. Thanks Natasha</p></blockquote><p></p>
[QUOTE="Natashanathan6, post: 1809, member: 487"] I think first my writing the questions mental health and well-being, you are already confusIng lots of us. The word well being is not used a lot, so to put it together with mental health, you need to make it clear what you are actually trying to help? It’s common for us to think that all Psychological,pychologists and Psychiatrists are the same, that they are all going to come in white coats and lock us up. When you go for help, so it actually stops some people going for help. I am autistic, and have fibromyalgia, hypomobility and have also had operations on my tummy because of of boarding tumour. I am now under Dr Carline Firman, senior clinical psychologist pain team. at the moment and had to ask my autism nurse to attend all the meeting with me. Because I was not only to frightened, but needed some reassurance also the way we/ an autistic person to experience pain is totally different than someone who is not autistic. Even ”worry tummy” is real if you are frightened or anxious about something it can make the pain worse. Learning where the pain comes from, is scary when you are on your own, then figuring out if you should talk to someone about it can be challenging. Making your mental health and well being even worse? Cognitive behavioural therapy is really good to help with mental health and wellbeing and it can be effective once your sessions have finished because you can the how to do some exercises on your own. I have seen counsellors, and psychiatrist who at first just Monitor me, because of all my health conditions, I just needed someone to talk to. They said there “ was nothing wrong with my mental health, but my health condition and society “ made it difficult sometimes. Covid-19 was emotional, and mental difficulty when all you see and hear is bad news about the effects on autism, volunteer Which works closely with inclusion north and sometimes and LeDeR in action North Yorkshie. So I already knew about those with learning disabilities and autism dying before their time, to young. The no help was given to look after us during covid-19 and we had the highest amount of deaths. Then all the news about DNR, not even properly talked about, was difficult. At some time my son, who is 22 became very unwell, with his mental health, we were in lock down at the time, because I am not the patient just the mum, no reasonable adjustment were put in place so I could communication with the team looking after him. There was lack of communication, and I was not heard or they thought I was over exaggerating, misinterpreted, what I was trying to say. As an result once my won, went to the hospital I had to seek help myself, the ripple effects, I am still struggling with now. it hard, for an autistic mum, who sudd finds there son has severe mental health problems, and help when my my head is tellling me to running away, this is is it physically and mentally to difficult, but your heart still says he is your son, I cannot separate my emotion, when asked what help I need away from what happening with my son. I am sorry for a going on.i have lots more to share. Thanks Natasha [/QUOTE]
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