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What is the 1 st most important priority for our autism policy?
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<blockquote data-quote="IrishInManchesterUK" data-source="post: 11291" data-attributes="member: 4553"><p>For me, I firmly believe and maintain that mental health and hidden disability needs its own separate body away from the NHS, properly funded and supported, as must also all autism charities, as a basic legal compliance issue, with far more severe legal penalties, up to and including criminal prosecutions and police involvement on those public bodies for non-compliance with the law, coupled with far greater enforcement measures to ensure that the law is being complied with, in a similar way to health and safety law or food safety law - we also need far stronger laws to ensure that the needs of autistic adults are being met, especially those of us diagnosed later in life, who need a post-diagnostic assessment, to (properly) assess both level and type of autism, any Co-occurring conditions and any appropriate post-diagnostic support going forward, as the basic legal minimum entitlement and obligation on all healthcare providers, both public and private - the current situation is totally absurd and totally unacceptable - “lack of funding” must not be allowed to be used as a legal defence/excuse for failure to comply with existing laws, a situation which already warrants immediate criminal prosecution and police/CPS involvement - we expect GP’s on the NHS to provide referrals for patients to even get private assessment and treatment, despite the fact that GP’s do not even have basic training nor experience in dealing with mental health or hidden disability issues, save those who may have come through university teaching hospitals, itself a “red flag” for corruption, while also, people diagnosed with autism later in life are expected to “muddle through” with no meaningful support after diagnosis - in 2026, we must be far more focused, far clearer and far more aggressive and argumentative in relentlessly demanding that our needs are met and become far more resolute, uncompromising, relentless in robustly challenging discrimination, corruption, hypocrisy and mismanagement wherever we encounter it, at every level and in every way</p></blockquote><p></p>
[QUOTE="IrishInManchesterUK, post: 11291, member: 4553"] For me, I firmly believe and maintain that mental health and hidden disability needs its own separate body away from the NHS, properly funded and supported, as must also all autism charities, as a basic legal compliance issue, with far more severe legal penalties, up to and including criminal prosecutions and police involvement on those public bodies for non-compliance with the law, coupled with far greater enforcement measures to ensure that the law is being complied with, in a similar way to health and safety law or food safety law - we also need far stronger laws to ensure that the needs of autistic adults are being met, especially those of us diagnosed later in life, who need a post-diagnostic assessment, to (properly) assess both level and type of autism, any Co-occurring conditions and any appropriate post-diagnostic support going forward, as the basic legal minimum entitlement and obligation on all healthcare providers, both public and private - the current situation is totally absurd and totally unacceptable - “lack of funding” must not be allowed to be used as a legal defence/excuse for failure to comply with existing laws, a situation which already warrants immediate criminal prosecution and police/CPS involvement - we expect GP’s on the NHS to provide referrals for patients to even get private assessment and treatment, despite the fact that GP’s do not even have basic training nor experience in dealing with mental health or hidden disability issues, save those who may have come through university teaching hospitals, itself a “red flag” for corruption, while also, people diagnosed with autism later in life are expected to “muddle through” with no meaningful support after diagnosis - in 2026, we must be far more focused, far clearer and far more aggressive and argumentative in relentlessly demanding that our needs are met and become far more resolute, uncompromising, relentless in robustly challenging discrimination, corruption, hypocrisy and mismanagement wherever we encounter it, at every level and in every way [/QUOTE]
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