Site Map
Donate
Home
About Us
Who we are
Our mission
Uniqueness of this organisation
The team
FAQ
What is the need
Forums
Featured
New posts
Trending
What's new
New posts
Latest activity
Help!
About Autism
What autism is
A human look at autism
Theories of autism
Autism as a disability
Neurodiversity
Quality of life
Changing the narrative
Diagnosis
Just diagnosed
Diagnosis intro slides
Your right to a diagnostic assessment
Guidelines and resources
Waiting times
Good conversations
Employment
Employment as factor of QoL
Lived Experience
Equality Act
Disclosure
Definition of disability
Autism as a disability
Reasonable adjustments
Neurodiversity as talent
Good resources
Relationships
Women and girls
Advocacy
Priorities
Self Advocacy
Our Programmes
What we believe in
Language use
How to get involved
Featured advocacy threads
Mentoring/Courses
Login / Register
Become a mentor
Courses
Employment - Tool Up
Wellbeing - Pathway
Autism training
Blogs
Guest Blog
Diagnosis experience
Could I be autistic
The journey to diagnosis
After diagnosis
H McConachie on QoL
My experience with unemployment
Measuring quality of life of autistic people
Resources
The autistic enactivist
Worn out
Living for the heatwave
Parenting challenges
Idea fair
Log in
Register
What's new
Featured
New posts
Trending
What's new
New posts
Latest activity
Log in
Register
Install the app
Install
Home
Forums
Main category
Introduce yourself
Anxiety about upcoming assessment
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="Camel" data-source="post: 12721" data-attributes="member: 5378"><p>Hi Bluelyn,</p><p></p><p>Please be kind to yourself. This is a huge. Going through the diagnostic process is draining.The realisation that you are different takes time to understand. Give yourself time to come to terms with this massive change in your life.</p><p></p><p>For many of us there are incredibly mixed feelings that we struggle to appreciate and process. Leading up to my assessment I could not have been more anxious. It felt like all the exams I’ve ever taken rolled into one. The waiting for the results and report was worse than doing my finals. What helped me was having a partner and friends who knew me and accepted me for who I am. The result made no difference to them and how they saw me.</p><p></p><p>I was happy and relieved to get my diagnosis. I then felt angry that I’d been undiagnosed and misdiagnosed for so long. I felt angry at the delay in getting an assessment. I felt a deep sense of grief for the life I could have had. I felt frustrated there was no post diagnosis support. I could get these feelings all at once or separately. It could be emotionally overwhelming and confusing. They could come at anytime. None of this is unusual……but then you only know this when you start to talk to other late diagnosed Autistics.</p><p></p><p>The best support I found was meeting and talking with other neurodivergent folks. Just knowing you are not alone is so comforting. Being able to be open and unmasked is such a relief. Having your experiences and feelings validated was, for me, the most positive and affirming experience. It is worth looking for adult Autistic support groups. NDSA have a number of in person meet ups in the Derbyshire area and also a number of online meetings. I don’t know how you feel about joining meetings. For me it was very difficult at first. You don’t have to have cameras or mics on in zoom meetings. You can just listen. It takes time to build confidence. Once you do become more confident and are able to engage, you will get the benefit and support of our community.</p><p></p><p>Managing burnout is one of the most challenging aspects of being Autistic. You have to give yourself time….lots of time. You have to find the things that bring you joy and restore your energy levels. This is different for each one of us. Regaining balance in your life is imperative. Start with the basics….sleep, nutrition and exercise. For me, walking and getting into nature always helped. Don’t push yourself beyond your capacity. It won’t help. Be patient and kind with yourself. If you keep pushing yourself back into the situations that precipitated you into to burnout, the result will be the same…burnout. You will need to identify the changes that you need to make in order to thrive. Recovery and being well will allow you to contribute. That is why right now you must prioritise yourself and being well.</p><p></p><p>Let me know if there is anything I can do to help.</p><p></p><p>Best wishes, </p><p></p><p>Wade</p><p></p><p>PS I love your avatar <img class="smilie smilie--emoji" loading="lazy" alt="😁" title="Beaming face with smiling eyes :grin:" src="https://cdn.jsdelivr.net/joypixels/assets/8.0/png/unicode/64/1f601.png" data-shortname=":grin:" /></p></blockquote><p></p>
[QUOTE="Camel, post: 12721, member: 5378"] Hi Bluelyn, Please be kind to yourself. This is a huge. Going through the diagnostic process is draining.The realisation that you are different takes time to understand. Give yourself time to come to terms with this massive change in your life. For many of us there are incredibly mixed feelings that we struggle to appreciate and process. Leading up to my assessment I could not have been more anxious. It felt like all the exams I’ve ever taken rolled into one. The waiting for the results and report was worse than doing my finals. What helped me was having a partner and friends who knew me and accepted me for who I am. The result made no difference to them and how they saw me. I was happy and relieved to get my diagnosis. I then felt angry that I’d been undiagnosed and misdiagnosed for so long. I felt angry at the delay in getting an assessment. I felt a deep sense of grief for the life I could have had. I felt frustrated there was no post diagnosis support. I could get these feelings all at once or separately. It could be emotionally overwhelming and confusing. They could come at anytime. None of this is unusual……but then you only know this when you start to talk to other late diagnosed Autistics. The best support I found was meeting and talking with other neurodivergent folks. Just knowing you are not alone is so comforting. Being able to be open and unmasked is such a relief. Having your experiences and feelings validated was, for me, the most positive and affirming experience. It is worth looking for adult Autistic support groups. NDSA have a number of in person meet ups in the Derbyshire area and also a number of online meetings. I don’t know how you feel about joining meetings. For me it was very difficult at first. You don’t have to have cameras or mics on in zoom meetings. You can just listen. It takes time to build confidence. Once you do become more confident and are able to engage, you will get the benefit and support of our community. Managing burnout is one of the most challenging aspects of being Autistic. You have to give yourself time….lots of time. You have to find the things that bring you joy and restore your energy levels. This is different for each one of us. Regaining balance in your life is imperative. Start with the basics….sleep, nutrition and exercise. For me, walking and getting into nature always helped. Don’t push yourself beyond your capacity. It won’t help. Be patient and kind with yourself. If you keep pushing yourself back into the situations that precipitated you into to burnout, the result will be the same…burnout. You will need to identify the changes that you need to make in order to thrive. Recovery and being well will allow you to contribute. That is why right now you must prioritise yourself and being well. Let me know if there is anything I can do to help. Best wishes, Wade PS I love your avatar 😁 [/QUOTE]
Verification
Post reply
Home
Forums
Main category
Introduce yourself
Anxiety about upcoming assessment
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.
Accept
Learn more…
NDSA Sitemap
Contact us
Facebook
Twitter
Instagram
Linkedin
Home
Home page
About us
Forums
Help!
Advocacy
Blogs
Donate
Contact us
About Us
Who we are
Our mission
What is unique
What is the need
FAQ
The Team
Services
Contact us
Forums
Login
/
Register
Featured
New posts
Trending
What's new
Help!
What autism is
Diagnosis
Employment
Relationships
Just diagnosed
Women and girls
How we can help
About Autism
What austism is
A human picture
Theories of autism organisation
Autism as a disability
Neurodiversity
Quality of life
Changing the narrative
Diagnosis
Just diagnosed - now what?
Diagnosis introduction
Your right to an assessment
Guidelines and resources
Waiting times
Good conversations
Employment
Employment as a factor of QoL
Lived experience
Equality act
Disclosure
Definition of disability
Autism as disability
Reasonable adjustments
Neurodiversity as talent
Reasonable adjustments
Mentoring & Courses
Login
/
Register
Become a mentor
Courses
Employment - Tool Up
Wellbeing - Pathway
Autism Training
Services
Your Account