Introduction

FluffyMe

New member
Hi I was diagnosed Aug 2024 and age 44 years old, I've struggled all my life and thinking everyone else was the same so just tried to carry on, I've had depression, anxiety and OCD all my life, my daughter was then diagnosed ADHD and I noticed a lot of the traits I do, I filled out the Autistic and ADHD forms. My daughter was then diagnosed Autistic so she's Audhd. I'm currently awaiting a date for my ADHD assessment within the next 6-8 weeks time, well now it's 5-8 weeks. I've done different Autistic courses in the past but I don't know where I'm to go from here after my diagnosis so this is the reason I've joined Pathways. I have Fibromyalgia, Osteoarthritis in both knees also and use a walking stick, lower back lumbar strain, bunions, depression, anxiety, OCD, Autistic and I'm definitely sure I'm ADHD too. I've been signed off work due to depression, anxiety and Fibromyalgia, I'm burnt out and exhausted from pain and the stresses if daily life as an Autistic human. I'm trying my hardest to unmask but I'm finding this extremely difficult, especially around family and work friends and out of work friends as I feel they think I'm now being fake 😩. I skin pick and currently awaiting an assessment with a therapist company and awaiting the hospital psychiatrist to contact me. I've recently since my diagnosis have reduced my contact with people as this drains me, I prefer text/written word to speaking as speaking makes me feel uncomfortable. My dad doesn't accept me being Autistic or having Fibromyalgia, it's always a competition with him if I bring up feeling unwell and I usually get the "well I'm older so I have more difficulty and that my being Autistic needs to be fixed 😩.

I love the Marvel Cinematic Universe, DC, anything Alien, UAP related, the unknown, these are the subjects I hyperfocus on alot, I have lists of lists and never get anything finished 😆. I have a big love for animals and I have five kittens and a Sprocker Spaniel, my Sprocker helps me during the night as I have night terrors and he wakes me during these. The kittens help me get through the day, these animals are all I need. I don't drink or smoke, I don't go anywhere, just the usual GP, chemist and hospital visits of course, I'm actually back at hospital tomorrow 15/06/25 but dreading this once.
Thanks.
Mel
 
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Hi Mel!

Im AuDHD too, im 44, and the struggle is real! I hope your hospital appointment went ok. I love dogs and animals too, but especially dogs and never finish anything I start either.....

I love Doctor who and cosplaying and go to a lot of conventions.

My mum <kind of> accepts my diagnoses, i have fibromyalgia and ehlers danlos syndrome as well, and dysautonomia, but she doesnt "get it" shes a "but look how bad ive got it" as well. And she doesnt get the fact that im totally not putting on my ADHD symptoms like I try soooo hard to be tidy and organised and I just CANT and it drives her crazy.

Anyhoo. I feel the struggle.
 
Hi Mel!

Im AuDHD too, im 44, and the struggle is real! I hope your hospital appointment went ok. I love dogs and animals too, but especially dogs and never finish anything I start either.....

I love Doctor who and cosplaying and go to a lot of conventions.

My mum <kind of> accepts my diagnoses, i have fibromyalgia and ehlers danlos syndrome as well, and dysautonomia, but she doesnt "get it" shes a "but look how bad ive got it" as well. And she doesnt get the fact that im totally not putting on my ADHD symptoms like I try soooo hard to be tidy and organised and I just CANT and it drives her crazy.

Anyhoo. I feel the struggle.
Hi,

Please could you advise how you got your diagnosis on the NHS please? I have been trying for 2 years to get the hEDS recognised that has been diagnosed privately. My last attempt was being sent to rheumatology last week. After taking a detailed history and physical examination, the consultant said: I dont know much about EDS as we don't deal with that here, but today I've ruled out autoimmune conditions and you have fibromyalgia.

The curveball of hearing this was a shock. Having read up on fibromyalgia since (AuDHD hyperfocus activated 😂), I do think it sound accurate, but there are still all the unexplained hEDS symptoms that have still been totally ignored.

Any advice from someone that actually gets how hard this is to get recognised would be gratefully appreciated! 🙏🏻

Thanks
Laura
 
Hi I was diagnosed Aug 2024 and age 44 years old, I've struggled all my life and thinking everyone else was the same so just tried to carry on, I've had depression, anxiety and OCD all my life, my daughter was then diagnosed ADHD and I noticed a lot of the traits I do, I filled out the Autistic and ADHD forms. My daughter was then diagnosed Autistic so she's Audhd. I'm currently awaiting a date for my ADHD assessment within the next 6-8 weeks time, well now it's 5-8 weeks. I've done different Autistic courses in the past but I don't know where I'm to go from here after my diagnosis so this is the reason I've joined Pathways. I have Fibromyalgia, Osteoarthritis in both knees also and use a walking stick, lower back lumbar strain, bunions, depression, anxiety, OCD, Autistic and I'm definitely sure I'm ADHD too. I've been signed off work due to depression, anxiety and Fibromyalgia, I'm burnt out and exhausted from pain and the stresses if daily life as an Autistic human. I'm trying my hardest to unmask but I'm finding this extremely difficult, especially around family and work friends and out of work friends as I feel they think I'm now being fake 😩. I skin pick and currently awaiting an assessment with a therapist company and awaiting the hospital psychiatrist to contact me. I've recently since my diagnosis have reduced my contact with people as this drains me, I prefer text/written word to speaking as speaking makes me feel uncomfortable. My dad doesn't accept me being Autistic or having Fibromyalgia, it's always a competition with him if I bring up feeling unwell and I usually get the "well I'm older so I have more difficulty and that my being Autistic needs to be fixed 😩.

I love the Marvel Cinematic Universe, DC, anything Alien, UAP related, the unknown, these are the subjects I hyperfocus on alot, I have lists of lists and never get anything finished 😆. I have a big love for animals and I have five kittens and a Sprocker Spaniel, my Sprocker helps me during the night as I have night terrors and he wakes me during these. The kittens help me get through the day, these animals are all I need. I don't drink or smoke, I don't go anywhere, just the usual GP, chemist and hospital visits of course, I'm actually back at hospital tomorrow 15/06/25 but dreading this once.
Thanks.
Mel
How you doing now? Have you managed to go back into work?