{"id":73,"date":"2019-11-12T14:00:39","date_gmt":"2019-11-12T14:00:39","guid":{"rendered":"http:\/\/ndsa.uk\/content\/?page_id=73"},"modified":"2022-03-20T13:27:54","modified_gmt":"2022-03-20T13:27:54","slug":"diagnosis-intro","status":"publish","type":"page","link":"https:\/\/ndsa.uk\/content\/diagnosis-intro\/","title":{"rendered":""},"content":{"rendered":"\n<style>\n \n\n@import url(\"https:\/\/fonts.googleapis.com\/css2?family=Noto+Sans&amp;display=swap\");\n* {\n  font-family: noto sans;\n}\n\n.google-slides-container {\n  position: relative;\n  width: 100%;\n  padding-top: 60%;\n  overflow: hidden;\n  max-width: 988px;\n  max-height: 584px;\n}\n\n.google-slides-container iframe {\n  position: absolute;\n  top: 0;\n  left: 0;\n  width: 100%;\n  height: 100%;\n}\n\n.title {\n  background-image: -webkit-gradient(linear, left top, right top, from(#28314f), color-stop(rgba(40, 49, 79, 0.8)), to(transparent)), url(\"https:\/\/ndsa.uk\/forum\/ndsa_images\/hero_diagnosis.jpg\");\n  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.button-toggle::before {\n  content: \"-\";\n  font-size: 30px;\n  color: darkgray;\n}\n\n#ndsa-accordion .container.active .button-toggle {\n  background-color: white;\n}\n\n#ndsa-accordion .container.active .content {\n  padding: 2rem;\n}\n\n#ndsa-accordion .container .content {\n  max-height: 0;\n  \/* transition: max-height 0.25s ease-out; *\/\n}\n\n#ndsa-accordion .container.active .content {\n  max-height: 20000px;\n  \/* transition: max-height 0.25s ease-in; *\/\n}\n\n\/*\n* Media queries\n*\/\n@media (max-width: 550px) {\n  #ndsa-accordion .container ul,\n  #ndsa-accordion .container ol {\n    padding-left: 10px !important;\n  }\n  #ww,\n  #om,\n  #tu,\n  #wi,\n  #tt,\n  #faq {\n    scroll-margin-top: 50px !important;\n  }\n}\n\n .title-diagnosis {\n  background-image: -webkit-gradient(linear, left top, right top, from(#28314f), color-stop(rgba(40, 49, 79, 0.8)), to(transparent)), url(\"https:\/\/ndsa.uk\/forum\/ndsa_images\/hero_diagnosis.jpg\");\n  background-image: linear-gradient(90deg, #28314f, rgba(40, 49, 79, 0.8), transparent), url(\"https:\/\/ndsa.uk\/forum\/ndsa_images\/hero_diagnosis.jpg\");\n  background-size: cover;\n  background-position: right center;\n   font-size: 2.7rem !important;\n}\n\n\n\n<\/style>\n\n\n\n<div class=\"ndsa-title title-diagnosis\">\n          <h1>Diagnosis<\/h1>\n        <\/div>\n\n<div id=\"ndsa-accordion\">\n          <!-- part 1  -->\n          <hr>\n          <a name=\"jd\" id=\"jd\"><\/a>\n          <div class=\"container jd \">\n            <div class=\"label\">\n              <span class=\"button-toggle\"><\/span>Just diagnosed \u2013 now what?\n            <\/div>\n            <div class=\"content\">\n              \n              <h2 id=\"congratulations-you-completed-a-giant-step\">\n                Congratulations, you completed a giant step\n              <\/h2>\n              \n\n              \n              <p>The short answers is:<\/p>\n              \n\n              \n              <ul>\n                <li>Take time to process and adjust to this new reality<\/li>\n                <li>\n                  Start building a positive autism identity, if you have already\n                  not done so\n                <\/li>\n                <li>\n                  Consider discussing it with other significant people in your\n                  life\n                <\/li>\n                <li>\n                  Research and consider very carefully whether to disclose it at\n                  work, look at our employment section.\n                <\/li>\n              <\/ul>\n              \n\n              \n              <p>\n                A lot of research has demonstrated that building positive autism\n                identity , understanding and acceptance of autistic differences\n                and fulfilling and recognised contribution to society are key\n                factors of autistic wellbeing and quality of life.\n              <\/p>\n              \n\n              \n              <h2 id=\"autistamatic-s-awesome-videos\">\n                Autistamatic\u2019s awesome videos\n              <\/h2>\n              \n\n              \n              <h4 id=\"relief-grief-and-belief\">\u201cRelief, grief and belief\u201d<\/h4>\n              \n\n              \n              <iframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/xUVneCSODMU\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen=\"\"><\/iframe>\n              \n\n              \n              <h4 id=\"what-next\">\u201cWhat Next?\u201d<\/h4>\n              \n\n              \n              <iframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/clhPUTNgWqc\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen=\"\"><\/iframe>\n              \n\n              \n              <h4 id=\"making-autism-work\">\u201cMaking Autism Work\u201d<\/h4>\n              \n\n              \n              <iframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/2sEQI6B-m28\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen=\"\"><\/iframe>\n              \n\n              \n              <h2 id=\"blog-by-autistic-phoenix\">Blog by Autistic Phoenix<\/h2>\n              \n\n              \n              <h3 id=\"my-autistic-charter\">\n                <a href=\"https:\/\/theautisticphoenix.home.blog\/2019\/10\/03\/my-autistic-charter\/\">\u201cMy autistic charter\u201d<\/a>\n              <\/h3>\n              \n\n              \n              <figure class=\"wp-block-image size-large is-resized ndsa-hide is-style-rounded\">\n                <img loading=\"lazy\" src=\"https:\/\/ndsa.uk\/content\/wp-content\/uploads\/2019\/12\/stockvault-angel-cloud-hdr135254-free-1024x683.jpg\" alt=\"\" class=\"wp-image-471\" width=\"286\" height=\"190\" srcset=\"https:\/\/ndsa.uk\/content\/wp-content\/uploads\/2019\/12\/stockvault-angel-cloud-hdr135254-free-1024x683.jpg 1024w, https:\/\/ndsa.uk\/content\/wp-content\/uploads\/2019\/12\/stockvault-angel-cloud-hdr135254-free-300x200.jpg 300w, https:\/\/ndsa.uk\/content\/wp-content\/uploads\/2019\/12\/stockvault-angel-cloud-hdr135254-free-768x512.jpg 768w, https:\/\/ndsa.uk\/content\/wp-content\/uploads\/2019\/12\/stockvault-angel-cloud-hdr135254-free-1536x1024.jpg 1536w, https:\/\/ndsa.uk\/content\/wp-content\/uploads\/2019\/12\/stockvault-angel-cloud-hdr135254-free.jpg 1800w\" sizes=\"(max-width: 286px) 100vw, 286px\" \/>\n              <\/figure>\n              \n            <\/div>\n          <\/div>\n\n          <!-- part 2 -->\n          <hr>\n          <a name=\"di\" id=\"di\"><\/a>\n          <div class=\"container di\">\n            <div class=\"label\">\n              <span class=\"button-toggle\"><\/span>Diagnosis Introduction\n            <\/div>\n            <div class=\"content\">\n              <div class=\"google-slides-container\">\n                <iframe loading=\"lazy\" src=\"https:\/\/docs.google.com\/presentation\/d\/e\/2PACX-1vTmCaBDhhhzWL85EnFYlVLI8g3InAatIs52eahPpZ9GdrQ0znioC8qRb9J1d6fgzVs1dtrdqT27Hb9q\/embed?start=false&amp;loop=true&amp;delayms=3000\" frameborder=\"0\" width=\"988\" height=\"584\" allowfullscreen=\"true\" mozallowfullscreen=\"true\" webkitallowfullscreen=\"true\"><\/iframe>\n              <\/div>\n            <\/div>\n          <\/div>\n\n          <hr>\n\n          <!-- part 3 -->\n          <hr>\n          <a name=\"yrta\" id=\"yrta\"><\/a>\n          <div class=\"container yrta\">\n            <div class=\"label\">\n              <span class=\"button-toggle\"><\/span>Your right to a diagnostic\n              assessment\n            <\/div>\n            <div class=\"content\">\n              \n              <h2 id=\"autism-act-2010\">Autism Act 2010<\/h2>\n              \n\n              \n              <p>The Act does two key things:<\/p>\n              \n\n              \n              <ol>\n                <li>\n                  Puts a duty on the Government to produce and regularly review\n                  an autism strategy to meet the needs of autistic adults in\n                  England.\n                <\/li>\n                <li>\n                  Puts a duty on the Government to produce statutory guidance\n                  for local authorities to implement the strategy locally.\n                <\/li>\n              <\/ol>\n              \n\n              \n              <p>\n                <a href=\"https:\/\/www.autism.org.uk\/about\/strategy\/overview.aspx\">ww.autism.org.uk\/about\/strategy\/overview.aspx<\/a>\n              <\/p>\n              \n\n              \n              <p>\n                The above link from NAS describes what the NHS and your local\n                authority should do and what processes should exist to meet your\n                needs in the local area.\n              <\/p>\n              \n\n              \n              <p>\n                Think Autism strategy (2014) is the latest update of the a\n                programme of action for the Department of Health and other\n                government departments should do to improve the lives of\n                autistic people. It is the latest implementation plan for the\n                Autism Act.\n              <\/p>\n              \n\n              \n              <p>\n                Think Autism\n                <a href=\"https:\/\/www.gov.uk\/government\/publications\/think-autism-an-update-to-the-government-adult-autism-strategy\">https:\/\/www.gov.uk\/government\/publications\/think-autism-an-update-to-the-government-adult-autism-strategy<\/a>\n              <\/p>\n              \n\n              \n              <p>\n                In 2019 the Department of Health conducted a consultation and it\n                should result in a new update to the Autism Strategy in the near\n                future.\n              <\/p>\n              \n\n              \n              <p>\n                The current Think Autism (2014) strategy defines 15 priorities\n                of action. It sees its vision as follows:\n              <\/p>\n              \n\n              \n              <p>\n                <em>\u2018The clear vision is that: \u201cAll adults with autism are able\n                  to live fulfilling and rewarding lives within a society that\n                  accepts and understands them. They can get a diagnosis and\n                  access support if they need it, and they can depend on\n                  mainstream public services to treat them fairly as\n                  individuals, helping them make the most of their talents.\u201d<\/em>\n              <\/p>\n              \n\n              \n              <p>The priority number 7 is to ensure access to the diagnosis<\/p>\n              \n\n              \n              <p>\n                <em>7. I want a timely diagnosis from a trained professional. I\n                  want relevant information and support throughout the\n                  diagnostic process.<\/em>\n              <\/p>\n              \n            <\/div>\n          <\/div>\n\n          <hr>\n\n          <!-- part 4 -->\n          <hr>\n          <a name=\"gar\" id=\"gar\"><\/a>\n          <div class=\"container gar\">\n            <div class=\"label\">\n              <span class=\"button-toggle\"><\/span>Guidelines and Resources\n            <\/div>\n            <div class=\"content\">\n              \n              <p>NICE<\/p>\n              \n\n              \n              <ul>\n                <li>\n                  <a href=\"https:\/\/www.nice.org.uk\/guidance\/cg142\/chapter\/guidance\">https:\/\/www.nice.org.uk\/guidance\/cg142\/chapter\/guidance#identification-and-assessment<\/a>\n                <\/li>\n                <li>\n                  <a href=\"https:\/\/www.nice.org.uk\/guidance\/qs51\/chapter\/Quality-statement-1-Diagnostic-assessment-by-an-autism-team\">https:\/\/www.nice.org.uk\/guidance\/qs51\/chapter\/Quality-statement-1-Diagnostic-assessment-by-an-autism-team<\/a>\n                <\/li>\n              <\/ul>\n              \n\n              \n              <p>NHS diagnoses guide<\/p>\n              \n\n              \n              <ul>\n                <li>\n                  <a href=\"https:\/\/www.nhs.uk\/conditions\/autism\/getting-diagnosed\/how-to-get-diagnosed\/\">https:\/\/www.nhs.uk\/conditions\/autism\/getting-diagnosed\/how-to-get-diagnosed\/<\/a>\n                <\/li>\n              <\/ul>\n              \n\n              \n              <p>\n                What happens at the assessment and what you could do while\n                waiting for one and after the result\n              <\/p>\n              \n\n              \n              <ul>\n                <li>\n                  <a href=\"https:\/\/www.nhs.uk\/conditions\/autism\/getting-diagnosed\/assessments\/\">https:\/\/www.nhs.uk\/conditions\/autism\/getting-diagnosed\/assessments\/<\/a>\n                <\/li>\n              <\/ul>\n              \n\n              \n              <p>NAS<\/p>\n              \n\n              \n              <ul>\n                <li>\n                  <a href=\"https:\/\/www.autism.org.uk\/about\/diagnosis\/criteria-changes.aspx##criteria \">https:\/\/www.autism.org.uk\/about\/diagnosis\/criteria-changes.aspx##criteria\n                  <\/a>\n                <\/li>\n                <li>\n                  <a href=\"https:\/\/www.autism.org.uk\/about\/strategy\/overview.aspx\">https:\/\/www.autism.org.uk\/about\/strategy\/overview.aspx<\/a>\n                <\/li>\n              <\/ul>\n              \n            <\/div>\n          <\/div>\n\n          <hr>\n\n          <!-- part 5 -->\n          <hr>\n          <a name=\"wt\" id=\"wt\"><\/a>\n          <div class=\"container wt\">\n            <div class=\"label\">\n              <span class=\"button-toggle\"><\/span>Waiting Times\n            <\/div>\n            <div class=\"content\">\n              \n              <p>\n                There NICE guideline for autism diagnosis specifies 3 months\n                lead time.\n              <\/p>\n              \n\n              \n              <p>\n                The latest report in June 2019 from the government\n                self-assessment found out that the waiting times for adults\u2019\n                autism assessment have doubled in the last two years.\n              <\/p>\n              \n\n              \n              <p>\n                The average wait is now <strong>30 weeks<\/strong>.. Clearly with\n                awareness the demand has increased while to supply of\n                specialists did not keep up.\n              <\/p>\n              \n\n              \n              <p>\n                <a href=\"https:\/\/www.gov.uk\/government\/publications\/autism-self-assessment-framework-exercise\/executive-summary\">https:\/\/www.gov.uk\/government\/publications\/autism-self-assessment-framework-exercise\/executive-summary<\/a>\n              <\/p>\n              \n\n              \n              <p>\n                NAS discusses the implications and its campaign:\n                <a href=\"https:\/\/www.autism.org.uk\/get-involved\/media-centre\/news\/2019-06-20-new-report-adult-diagnosis-waiting-times.aspx\">https:\/\/www.autism.org.uk\/get-involved\/media-centre\/news\/2019-06-20-new-report-adult-diagnosis-waiting-times.aspx<\/a>\n              <\/p>\n              \n            <\/div>\n          <\/div>\n\n          <hr>\n\n          <!-- part 6 -->\n          <hr>\n          <a name=\"gc\" id=\"gc\"><\/a>\n          <div class=\"container gc\">\n            <div class=\"label\">\n              <span class=\"button-toggle\"><\/span>Good Conversations\n            <\/div>\n            <div class=\"content\">\n              <div class=\"entry-content\">\n                <p><\/p>\n\n                <ul>\n                  <li>\n                    <a rel=\"noreferrer noopener\" href=\"https:\/\/twitter.com\/steve_asbell\/status\/1232060929405259782\" target=\"_blank\">An unofficial autism quiz\n                    <\/a>\n                  <\/li>\n                  <li>\n                    <a rel=\"noreferrer noopener\" href=\"https:\/\/community.autism.org.uk\/f\/adults-on-the-autistic-spectrum\/13744\/ados-assessment-no-spoilers\" target=\"_blank\">What is happening at the assessment<\/a>\n                  <\/li>\n                  <li>\n                    <a rel=\"noreferrer noopener\" href=\"https:\/\/community.autism.org.uk\/f\/adults-on-the-autistic-spectrum\/16105\/assessment-tomorrow-tired-and-feel-like-a-fraud\" target=\"_blank\">Feeling before the assessment<\/a>\n                  <\/li>\n                  <li>\n                    <a rel=\"noreferrer noopener\" href=\"https:\/\/community.autism.org.uk\/f\/adults-on-the-autistic-spectrum\/15608\/got-my-report-a-surprise-as-i-m-still-waiting-for-ados   https:\/\/bit.ly\/2Mj8pxU\" target=\"_blank\">Got my report<\/a>\n                  <\/li>\n                  <li>\n                    <a rel=\"noreferrer noopener\" href=\"https:\/\/community.autism.org.uk\/f\/adults-on-the-autistic-spectrum\/15706\/newly-diagnosed-my-life-is-ruined\" target=\"_blank\">Desperate and depressed<\/a>\n                  <\/li>\n                  <li>\n                    <a rel=\"noreferrer noopener\" href=\"https:\/\/community.autism.org.uk\/f\/adults-on-the-autistic-spectrum\/15663\/on-being-seen-as-too-able\" target=\"_blank\">Masking<\/a>\n                  <\/li>\n                  <li>\n                    <a href=\"https:\/\/community.autism.org.uk\/f\/adults-on-the-autistic-spectrum\/15832\/i-m-officially-waiting\">https:\/\/community.autism.org.uk\/f\/adults-on-the-autistic-<\/a><a href=\"https:\/\/community.autism.org.uk\/f\/adults-on-the-autistic-spectrum\/15832\/i-m-officially-waiting\" target=\"_blank\" rel=\"noreferrer noopener\">spectrum\/15832\/i-m-officially-waiting<\/a>\n                  <\/li>\n                  <li>\n                    <a rel=\"noreferrer noopener\" href=\"https:\/\/community.autism.org.uk\/f\/adults-on-the-autistic-spectrum\/16801\/asd-assessment-as-an-adult-how-to-ask-for-parental-involvement\" target=\"_blank\">About others\u2019 reaction<\/a>\n                  <\/li>\n                  <li>Helpful conversations on the forum<\/li>\n                <\/ul>\n              <\/div>\n            <\/div>\n          <\/div>\n\n          <hr>\n \n        <\/div>\n\n\n\n<script>\n\/*\n* add toggle section functionality\n*\/\nconst accordion = document.getElementsByClassName('container');\n\nfor (i=0; i<accordion.length; i++) {\n  accordion[i].addEventListener('click', function () {\n    this.classList.toggle('active')\n  })\n}\n\n\/*\n* open and jump to section if queryparam in url\n*\/\nconst urlSearchParams = new URLSearchParams(window.location.search);\nvar params = Object.fromEntries(urlSearchParams.entries());\n\nvar el = document.querySelector('.' + params.section);\nif (el !== null) {\n    \n    el.classList.add('active');\n    setInterval(()=>location.hash = \"#\" + params.section, 200)\n}\n\n\n<\/script>\n","protected":false},"excerpt":{"rendered":"<p>Diagnosis Just diagnosed \u2013 now what? Congratulations, you completed a giant step The short answers is: Take time to process and adjust to this new reality Start building a positive autism identity, if you have already not done so Consider discussing it with other significant people in your life Research and consider very carefully whether &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/ndsa.uk\/content\/diagnosis-intro\/\" class=\"more-link\">Read more\u2026<\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":[],"rttpg_featured_image_url":null,"rttpg_author":{"display_name":"Marie","author_link":"https:\/\/ndsa.uk\/content\/author\/marie\/"},"rttpg_comment":0,"rttpg_category":null,"rttpg_excerpt":"Diagnosis Just diagnosed \u2013 now what? Congratulations, you completed a giant step The short answers is: Take time to process and adjust to this new reality Start building a positive autism identity, if you have already not done so Consider discussing it with other significant people in your life Research and consider very carefully whether&hellip;","_links":{"self":[{"href":"https:\/\/ndsa.uk\/content\/wp-json\/wp\/v2\/pages\/73"}],"collection":[{"href":"https:\/\/ndsa.uk\/content\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/ndsa.uk\/content\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/ndsa.uk\/content\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/ndsa.uk\/content\/wp-json\/wp\/v2\/comments?post=73"}],"version-history":[{"count":32,"href":"https:\/\/ndsa.uk\/content\/wp-json\/wp\/v2\/pages\/73\/revisions"}],"predecessor-version":[{"id":1892,"href":"https:\/\/ndsa.uk\/content\/wp-json\/wp\/v2\/pages\/73\/revisions\/1892"}],"wp:attachment":[{"href":"https:\/\/ndsa.uk\/content\/wp-json\/wp\/v2\/media?parent=73"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}